Sorry for not filling these pages for a while faithful and infidelic readers. My mind and body have been under major construction and most of my creative focus has been drained on the artistic outlets that I make money on and the rest of my energy is kind of lost. I’ve been lost yet searching while waiting for my mental, physical and spiritual portals to show me some light and it’s been found. Perhaps the following will explain a little so be patient or skip to the good parts.
As always- thanks for reading.
I recklessly take new medications with out reading the label and the big slip describing all of the side effects. I take the pill then either the pill works, doesn’t work I feel the side effects or I don’t. Then I read the side effects if something feels wrong.
I finally went to see a neurologist after 5 years of being diagnosed with Trigeminal Neuralgia, a facial nerve disorder is how I describe I to most people but it’s much deeper than that or it wouldn’t be nick-named as the “suicide disease”.
It took 5 or 6 months of waiting for this appointment because having Medicaid as my insurance I am on a lower priority rank at the office. Medicaid even provides me with rides to and from my house which can be nerve racking and a God send at different times depending who the driver is.
I met with a beautiful Asian Dr named Dr Tracey Wang. I was expecting an old unattractive woman for some reason. I don’t even know why this was an issue-I guess it was more of a passing observation. She did a lot of standard physical tests like reflexes on my legs, knees, arms, legs and even my face. I was in pain when I got there and purposely didn’t take any of my pain meds so she could see my pain if possible. The cold medal of her small reflex tool did cause pain on my face.
When she was finished checking my pain she moved on to tell me what steps I need to take next. She wrote a referral for an MRI and another brain scan of the face that I can’t remember what it’s called, a referral to pain management who may be able to write prescriptions for pain medications because this doctor my new family doctor do not like to prescribe pain medicine. Hopefully I won’t need pain medication with the new anti-seizure medication.
I filled my prescription for the new medication Oxcarbazepine (Trileptal) on my way to stay at my mother’s. I stay there every Friday night in case my uncle needs me to help him with work on Saturdays doing minor office cleaning a few blocks from my mom’s house. I was planning to stay at mom’s until the following Tuesday in case my sick aunt needed watching over if my uncle had to go anywhere like his Doctor appointments because my mom had preplanned a vacation. I watched some television and did a little writing and went t bed at a decent hour because I was called into work for 8 am Saturday morning. I took the Oxcarbazepine (Trileptal) for the first time that night.
I woke up late with little time to get ready and have coffee the next morning and I couldn’t get off the couch I normally sleep on. My face was half numb and half hurting. My arms were numb and semi seizuring. My eyes were blurred and swollen. I made some quick instant coffee and could barely hold the cup. I took all of my morning medications and debated skipping the new one but took one anyway assuming this was all just a side effect that will pass. I sat on the porch and tried to steady myself for a morning smoke and coffee with shaking hands and face. I called one of the other workers to let him know that I was running late. He made a sarcastic remark about me hurrying up that I took serious and sent my anxiety through the roof. I eventually settled a bit and got my ass off to work. My co-workers looked at me like I looked the way I felt. I felt like I had the worst hangover ever. I haven’t had a drink in a while either. I went to work slowly but found myself feeling better once the pain medications kicked in. I made it through work and then a visit to see my uncle and aunt. Great aunt and her “man” of almost 20 years. That’s another story. I eventually made it back to my mom’s and was in and out of it for the next 4 or 5 days.
Every day I’d wake up at different times with various symptoms and deal with it the best I could. I watched a lot of television and barely did any drawing, writing or reading. My mind and body went through changes each day. I did manage to check the side effects each day to make sure most of them were normal ones and I didn’t need to go to the hospital or stop taking the new medication. Since I had to stay at my mom’s anyway I stayed “on call” until Thursday when I had a group therapy thing that night with rides set up through medical insurance . .bla blah.. If you’re still with me folks keep reading. I might actually have a point to these 3 pages of 16 point type.
What I thought was going to be a mini-vacation at my mom’s house for 4 days turned into a 5-day rehabilitation and medication adjustment. The seizures and numbness lessened and now I am just numb in the tongue for some reason. The pain lessened the 2nd day and my dizziness and sleepiness continued but that’s understandable because I take several pills with the same side effect.
This is the first time that I am giving new medications for my Trigeminal Neuralgia and my bipolar a chance for more than a few days in a while. Usually, if I don’t like the side effects I stop. Also, having jobs and many commitments I had to stop taking come meds or I’d lose my job and relationships. Fortunately or unfortunately, I have the freedom and time to give medications the proper time to work through my system and adjust to them and see if they will work. It’s also the first time I feel hope and faith through the temporary side effects to feel better. If it means a few weeks or a few months to find out so be it.
I might end up stop taking some of them and trying it again and that’s ok also because I’ve learned that treating rare neuralgic disorders and mental illness is not an exact science. Sometimes faith and hope is the most important ingredient to the recipe of mental, emotional, physical and spiritual wellness.
Oh yeah -Doctors, lawyers, psychiatrists therapists, group therapy and 12-step meetings are also part of the mix to my personal recovery. If I keep it all balances and don’t let myself get overwhelmed then I might even grow up and out of whatever it is I am now and was before