Mind is Under Construction, Sexy Asian Neurologist and Oxcarbazepine (Trileptal)

May 11, 2012

Sorry for not filling these pages for a while faithful and infidelic readers. My mind and body have been under major construction and most of my creative focus has been drained on the artistic outlets that I make money on and the rest of my energy is kind of lost. I’ve been lost yet searching while waiting for my mental, physical and spiritual portals to show me some light and it’s been found. Perhaps the following will explain a little so be patient or skip to the good parts.

As always- thanks for reading.

Oxcarbazepine (Trileptal)

I recklessly take new medications with out reading the label and the big slip describing all of the side effects. I take the pill then either the pill works, doesn’t work I feel the side effects or I don’t. Then I read the side effects if something feels wrong.

I finally went to see a neurologist after 5 years of being diagnosed with Trigeminal Neuralgia, a facial nerve disorder is how I describe I to most people but it’s much deeper than that or it wouldn’t be nick-named as the “suicide disease”.

 

It took 5 or 6 months of waiting for this appointment because having Medicaid as my insurance I am on a lower priority rank at the office. Medicaid even provides me with rides to and from my house which can be nerve racking and a God send at different times depending who the driver is.

I met with a beautiful Asian Dr named Dr Tracey Wang. I was expecting an old unattractive woman for some reason. I don’t even know why this was an issue-I guess it was more of a passing observation. She did a lot of standard physical tests like reflexes on my legs, knees, arms, legs and even my face. I was in pain when I got there and purposely didn’t take any of my pain meds so she could see my pain if possible. The cold medal of her small reflex tool did cause pain on my face.

When she was finished checking my pain she moved on to tell me what steps I need to take next. She wrote a referral for an MRI and another brain scan of the face that I can’t remember what it’s called, a referral to pain management who may be able to write prescriptions for pain medications because this doctor my new family doctor do not like to prescribe pain medicine. Hopefully I won’t need pain medication with the new anti-seizure medication.

I filled my prescription for the new medication Oxcarbazepine (Trileptal) on my way to stay at my mother’s. I stay there every Friday night in case my uncle needs me to help him with work on Saturdays doing minor office cleaning a few blocks from my mom’s house. I was planning to stay at mom’s until the following Tuesday in case my sick aunt needed watching over if my uncle had to go anywhere like his Doctor appointments because my mom had preplanned a vacation. I watched some television and did a little writing and went t bed at a decent hour because I was called into work for 8 am Saturday morning. I took the Oxcarbazepine (Trileptal) for the first time that night.

I woke up late with little time to get ready and have coffee the next morning and I couldn’t get off the couch I normally sleep on. My face was half numb and half hurting. My arms were numb and semi seizuring. My eyes were blurred and swollen. I made some quick instant coffee and could barely hold the cup. I took all of my morning medications and debated skipping the new one but took one anyway assuming this was all just a side effect that will pass. I sat on the porch and tried to steady myself for a morning smoke and coffee with shaking hands and face. I called one of the other workers to let him know that I was running late. He made a sarcastic remark about me hurrying up that I took serious and sent my anxiety through the roof. I eventually settled a bit and got my ass off to work. My co-workers looked at me like I looked the way I felt. I felt like I had the worst hangover ever. I haven’t had a drink in a while either. I went to work slowly but found myself feeling better once the pain medications kicked in. I made it through work and then a visit to see my uncle and aunt. Great aunt and her “man” of almost 20 years. That’s another story. I eventually made it back to my mom’s and was in and out of it for the next 4 or 5 days.

Every day I’d wake up at different times with various symptoms and deal with it the best I could. I watched a lot of television and barely did any drawing, writing or reading. My mind and body went through changes each day. I did manage to check the side effects each day to make sure most of them were normal ones and I didn’t need to go to the hospital or stop taking the new medication. Since I had to stay at my mom’s anyway I stayed “on call” until Thursday when I had a group therapy thing that night with rides set up through medical insurance . .bla blah.. If you’re still with me folks keep reading. I might actually have a point to these 3 pages of 16 point type.

What I thought was going to be a mini-vacation at my mom’s house for 4 days turned into a 5-day rehabilitation and medication adjustment. The seizures and numbness lessened and now I am just numb in the tongue for some reason. The pain lessened the 2nd day and my dizziness and sleepiness continued but that’s understandable because I take several pills with the same side effect.

This is the first time that I am giving new medications for my Trigeminal Neuralgia and my bipolar a chance for more than a few days in a while. Usually, if I don’t like the side effects I stop. Also, having jobs and many commitments I had to stop taking come meds or I’d lose my job and relationships. Fortunately or unfortunately, I have the freedom and time to give medications the proper time to work through my system and adjust to them and see if they will work. It’s also the first time I feel hope and faith through the temporary side effects to feel better. If it means a few weeks or a few months to find out so be it.

I might end up stop taking some of them and trying it again and that’s ok also because I’ve learned that treating rare neuralgic disorders and mental illness is not an exact science. Sometimes faith and hope is the most important ingredient to the recipe of mental, emotional, physical and spiritual wellness.

Oh yeah -Doctors, lawyers, psychiatrists therapists, group therapy and 12-step meetings are also part of the mix to my personal recovery. If I keep it all balances and don’t let myself get overwhelmed then I might even grow up and out of whatever it is I am now and was before

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Shit. Piss. Fuck. Blah blah blah . . .

August 24, 2011

 

Shit. Fuck. Piss. Etc. Man this new way of life is making my new way of living extremely difficult. Blah. Blah. Blah.

 

My bills exceed my income every month. Ever since I moved in this house of hell in October 2010 with my good friend and now moody, secretive passive aggressive roommate. My  landlord is also a friend and an aggressive no bullshit type landlord who gets upset when money is late for the rent and the electric and water bills he pays for this house. Blaah bla blah.

 

Piss. Shit. Fuck. I’ve been out of work since May 2010. I was living with my adopted mom. I had a lot of money in the bank and little rent to pay. It was a great deal and I wanted to get my creative projects finished despite my little unemployment checks. I published my first novel a few days after I was fired for example. I wanted to carry the unemployment and my savings as long as I could. I picked up a little labor work with my uncle here and there. Life was good. Not for my Mom. I could tell she wanted me out. Blah. Blah Blah.

 

Fuck. Piss. Shit. An opportunity arose that I couldn’t resist. My friend owned the house next door to his and was renting it out cheap. It’s a 2 bedroom house and I knew a friend that I had talked about getting a place together for years. It was all set for October 1st 2010. I had plenty of money to last me 3 months or so. I figured I’d get a job at that point. I know I’ve written about this shit so many times but I need to update it for me and possibly you. Blah. Blah. Blah.

 

Shit. Fuck. Piss. When all other options were dwindling I tried to work. A good friend of mine at the time hooked me up with a phone collections job where he worked. It was straight commission. I have 10 years experience doing phone sales and I had high hopes for this job. I was excited. The guy hiring me interviewed me and hired me pretty fast but kept putting off the training date. A week before I was to start my Trigeminal Neuralgia (TN) came out of a 2-year remission. It affected me pretty badly and my Bipolar disorder and anxiety were back in full force. I over slept on my second day of training. I tried calling several times to save my job to no avail. My friend that got me the job told me to just come in person. I was in pain and depression and fear. I lost the job. It was then that I realized that maybe I am unable to work.  Blah blah blah.

 

Piss. Shit. Fuck. It was around this time my adopted mom suggested I pursue the wonderful world of Social Security Disability. She was the last person I know that would support me going on SSD. She has never thought that I was incapable of working. She saw the change. She even read up on Trigeminal Neuralgia and Bipolar disorder. Several acquaintances also suggested I try to apply for SSD. On even had an agency that handles everything for you for a percentage of the retro disability reimbursement called Allsup. I called and started the process back in February 2011. It’s now nearing the end of August and I’m still getting letters and now doctors appointments with their doctors. Blah blah blah. Shit

 

This shit. This piss. This fucking piss shit waiting period could last forever. I have another appointment with a neurologist and then I’m told it will take another month to process and make a decision. I’m kind of happy I get to see the doctors and they can see for themselves what a mess I can be. Blah. After a month my SSD case can go several ways. The best scenario is I get accepted, Allsup takes their cut of my retro pay and I get a check just big enough to pay back the people I borrowed money from, catch up on my immediate bills and then get my barely comfortable monthly check. Blah blah. Or I get rejected and Allsup will fight the rejection and it starts all over again and can take another 3 -6 months or more. Shit. Blah.

 

Fuck, shit piss. The other option is that my case will be moved into another level of evaluation whatever the fuck that means and it will be a few more months of waiting. Then there may be another level of waiting. Waiting. Blah. Fucking blah… My unemployment may be running out in November and if there is no decision by then I am more fucked then I feel like I am now. Blah. Blah blah.

 

Shit. Piss. Fuck. I have had enough. I have never been so broke. I have never had to ask friends and family and friends like this before. My depression, anxiety and face pain are at the extreme. Despite this fact I go numb with denial and escape and want to run, hide (if I could move) or take some deluded yet creative and possibly successful drastic moves. Blahhhhh

 

Bills piling. Shit. If something doesn’t change I could be carless, homeless and broke in even more major debt than ever. Piss. Helpless? Hopeless. I’m not sure. All I know is that I had enough. Enough.

 

Not sure where I will go from here to deal with this shit. All I know is that something has to be done soon before my life is complete udder piss. I have to fuck things up somehow in a different direction. Fly my own . ..blah blah blah… etc…

 

Must win or die trying.

 

 


Broken

June 6, 2011

Never say, “it can’t get any worse than this.” It always does. Maybe it’s a self-fulfilling prophecy. Maybe it’s self-sabotage. Maybe it’s fate. Maybe it’s a “jinx”. Whatever it is, it can and most of the time gets worse.

I’ve been writing through it. I can’t seem to finish anything to post. I’m afraid to post certain things about my life. I am breaking my entire life’s goal to hold nothing back in my writing. I find myself holding many things back for various reasons. I don’t want certain people to know certain things about me. I am embarrassed and ashamed of my life conditions at times. I am afraid of letting you in.

The more down hill my life seems to go I am les inclined to write and post about it anywhere. Fuck it. I’m going to start letting things out. I am helpless and feel hopeless on and off through this past year. It’s mostly due to my Trigeminal Neuralgia (TN) and Bipolar Disorder and related depressions and anxiety. These conditions led me to my financial condition and create more stress, which is the key activator of my conditions.

At first when I was fired last year I was devastated but I had things under control financially because I was living with my mother and had a lot of money in the bank. I didn’t want to work right away. I wanted the summer off to publish my novel and promote it to minimum prevail and create videos and more books to sell. It was the ideal life of a single artist from my viewpoint. By August and September 2010 I noticed that my mother was increasingly unhappy with me around the house all day with the exception of my AA meeting attendance. I was less and less interested in socializing and I even started getting anxiety when I did socialize followed by depression when it was over. Since I was fired I lost my health insurance and stopped seeing a psychiatrist and therapist. My family doctor kept up my prescriptions.

I started looking for ways to make money and jobs and made a little bit here and there. My savings started dwindling by September 2010. I knew my mom and I wouldn’t get along without my getting a job. At the same time I was talking to my friend from meetings and he mentioned in passing that he was getting a house he owned ready to be rented out. I asked how much and how many bedrooms. The price was cheap and it had 2 bedrooms so I immediately jumped on it mostly to save my relationship with my mother. I didn’t want to move. I had no ego about living with my mother at my age like I would have at one time due to the circumstances. I had a friend in mind to move in with me that I’ve known for years and we’ve talked about living together despite our similarities and differences.

I admit I was excited about the house when my friend told me about it and the first time I took the tour. The day I drove to the house to sign the lease and pay our deposit and rent I got a really bad feeling that it was a bad idea. My blinders were down and I looked around the bad neighborhood I was about to move into. Camden. Camden, NJ has the highest crime rate in the country. My new neighborhood id the nicer part of Camden. I grew up here years ago before it got so bad. My friend now landlord assured me that he has had no problems in the 30 years he lived here. My roommate and I went out to celebrate the house at a big steak house and chowed down and I repressed my feelings pretending to be happy.

I moved in reluctantly October 1st 2010 and I have yet to be entirely comfortable in the house, the neighborhood or with my roommate since. Once in a while I would be ok. At first I couldn’t find my creative inspiration. After living in the house I grew up in with parents that were successful artists supplying me with inspiration on a daily basis it was a huge adjustment.

I was set financially to cover the first couple of months or so. I was collecting little unemployment. My great aunt’s boyfriend who I consider an uncle threw me a little work here and there with his business but not enough. My bills were barely getting paid but there were getting paid. I cashed out my 3 401ks to help pay bills. Each month something would come up to cover my bills. From little jobs here and there to selling my serial killer collectables and my personal artwork online.

In November 2010 another friend said he could get me a job doing phone collections. At first I was hesitant but I eventually got excited. He set me up with an interview in November 2010. I fell in love with the job and I was hired on the spot due to my experience in phone sales. I was given the runaround with a start date. I was told I’d start the middle of December 2010 and didn’t get my start date until the middle of January 2011.

After a 2 year remission my TN came back a week before my training date. I went back on painkillers and increased my anti-seizure meds. I made it to my first day of training and it went well. That night I had a major TN attack and had to take pain meds and was up all night. I woke up at 12 pm and I was supposed to be there at 10am. I blew it. I tried calling. I thought about going in anyway but didn’t want to waste the long drive. I eventually talked to the boss and he fired me. I was devastated. My pain got worse and my depression kicked in. I was in shell shock. This hasn’t happened since I was an active drug user and alcoholic 20 years ago but I was sober.

I was a wreck. I had such high hopes for the job and the money. I had started a social network called Novaboon with my roommate and I was going to out money into that and many other internet projects. I had goals and reams again before I started the job. It all came crashing down in one event as a result of my TN and Bipolar.

I got through the following months selling things and spending less. It was barely enough. I was coming to the conclusion that perhaps I am one of those people that needs to be on Disability. I’ve always viewed people on disability as copping out unless they were seriously and visibly disabled. I was also worried about my mom’s opinion. She always said she would disown me if I were on disability. Maybe not that extreme but she would be unhappy. The day came months ago that even my mom suggested I apply for disability. I did. I am. I used a service that a friend recommended to do the work for me.

I have a friend that has been on SSD for the past 15 years or so and I used to watch him having to jump through hoops and go crazy to meet the requirements to stay on it. I remember thinking that it’s easier just to get a job because it’s less work and aggravation than trying to get SSD. It’s a catch 22. Most people that are disabled whether it be mental or physical have trouble making appointments, filing paperwork, meeting deadlines, following through with things and functioning on any “normal level” therefore it’s a fight for us to get the disability. That’s why I used a service. I still had to follow through with paper work and phone calls. When I get depressed I can become immobilized. I am literally unable to move or do anything. I used to think that I was a lazy person. I’ve come to realize that it’s depression that keeps me from doing things. Most people don’t see the difference.

The last week of May I was committed to traveling to Indianapolis, IN for a true crime convention called The Crime Scene to sell my art, my books and perform my songs about serial killers. One of the guys in charge who I call friend now, took care of my flight and a place to stay. I was taking a big chance buying a bunch of my books to sell there when I barely had enough to pay my rent. My car broke down the week before. I had major bills due as well. The travel was a pain but the event was a nice escape and I sold out of my books and sold some art. My agoraphobia disappeared for the weekend. It was like a fantasy escape. No thoughts of my problems for a few days. I came home and I was worse. More pain. More anxiety. I was short paying the rent.  Owe my cousin money for helping me with the rent. I owe my roommate money for my car because he got it fixed since he was driving it at the time. My registration expired and my insurance payment is over due. I have barely enough money in my pocket to buy food and smokes for the next couple of days.

To top the problems of the month off, my unemployment is being held and reviewed and will not be settled until June 15th 2011 on a phone interview. I was informed it’s because I was fired. I might lose the little unemployment payments I was getting.

I am planning on going to Welfare and apply for food stamps and see about rental assistance. My depression is getting so bad combined with my fear and agoraphobia I am having trouble getting out to the office. I ried calling and the phone system hung up on me several times after 20-30 minutes of waiting.

My roommate suggested I try and get a job yesterday and work the minimum hours allowed when on disability. He went on line to find out the minimum etc. I’m afraid if I get a job I will be rejected on the disability. Not to mention that I might not be able to handle working which is why I applied for disability in the first place. I called the company handling my case and asked them about working. I can work 10-15 hours a week and I can’t make more than $800 a month. I have to call them if I get a job and fill out more paper work. I asked the representative to be honest with me off the record. I asked if I worked on record would it affect my case and are the chances good that I will be turned down if I am working. She said yes it would look bad if I worked.

So here I am. Depressed. Afraid. In pain. No income. I am selling nothing and falling into more debt. I have projects in the works but no motivation to get them going. I’m living in a house and neighborhood I hate with an unpredictable roommate that I like but I am uncomfortable living with him.

Through my life I have always survived. I know I will survive again. I am an artist, writer and a creative mad man. I am a Bipolar, agoraphobic, anxious artist with the worst pain known to man and as hopeless as I feel I know this will pass and I will come out alive.


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