Mind is Under Construction, Sexy Asian Neurologist and Oxcarbazepine (Trileptal)

Sorry for not filling these pages for a while faithful and infidelic readers. My mind and body have been under major construction and most of my creative focus has been drained on the artistic outlets that I make money on and the rest of my energy is kind of lost. I’ve been lost yet searching while waiting for my mental, physical and spiritual portals to show me some light and it’s been found. Perhaps the following will explain a little so be patient or skip to the good parts.

As always- thanks for reading.

Oxcarbazepine (Trileptal)

I recklessly take new medications with out reading the label and the big slip describing all of the side effects. I take the pill then either the pill works, doesn’t work I feel the side effects or I don’t. Then I read the side effects if something feels wrong.

I finally went to see a neurologist after 5 years of being diagnosed with Trigeminal Neuralgia, a facial nerve disorder is how I describe I to most people but it’s much deeper than that or it wouldn’t be nick-named as the “suicide disease”.

 

It took 5 or 6 months of waiting for this appointment because having Medicaid as my insurance I am on a lower priority rank at the office. Medicaid even provides me with rides to and from my house which can be nerve racking and a God send at different times depending who the driver is.

I met with a beautiful Asian Dr named Dr Tracey Wang. I was expecting an old unattractive woman for some reason. I don’t even know why this was an issue-I guess it was more of a passing observation. She did a lot of standard physical tests like reflexes on my legs, knees, arms, legs and even my face. I was in pain when I got there and purposely didn’t take any of my pain meds so she could see my pain if possible. The cold medal of her small reflex tool did cause pain on my face.

When she was finished checking my pain she moved on to tell me what steps I need to take next. She wrote a referral for an MRI and another brain scan of the face that I can’t remember what it’s called, a referral to pain management who may be able to write prescriptions for pain medications because this doctor my new family doctor do not like to prescribe pain medicine. Hopefully I won’t need pain medication with the new anti-seizure medication.

I filled my prescription for the new medication Oxcarbazepine (Trileptal) on my way to stay at my mother’s. I stay there every Friday night in case my uncle needs me to help him with work on Saturdays doing minor office cleaning a few blocks from my mom’s house. I was planning to stay at mom’s until the following Tuesday in case my sick aunt needed watching over if my uncle had to go anywhere like his Doctor appointments because my mom had preplanned a vacation. I watched some television and did a little writing and went t bed at a decent hour because I was called into work for 8 am Saturday morning. I took the Oxcarbazepine (Trileptal) for the first time that night.

I woke up late with little time to get ready and have coffee the next morning and I couldn’t get off the couch I normally sleep on. My face was half numb and half hurting. My arms were numb and semi seizuring. My eyes were blurred and swollen. I made some quick instant coffee and could barely hold the cup. I took all of my morning medications and debated skipping the new one but took one anyway assuming this was all just a side effect that will pass. I sat on the porch and tried to steady myself for a morning smoke and coffee with shaking hands and face. I called one of the other workers to let him know that I was running late. He made a sarcastic remark about me hurrying up that I took serious and sent my anxiety through the roof. I eventually settled a bit and got my ass off to work. My co-workers looked at me like I looked the way I felt. I felt like I had the worst hangover ever. I haven’t had a drink in a while either. I went to work slowly but found myself feeling better once the pain medications kicked in. I made it through work and then a visit to see my uncle and aunt. Great aunt and her “man” of almost 20 years. That’s another story. I eventually made it back to my mom’s and was in and out of it for the next 4 or 5 days.

Every day I’d wake up at different times with various symptoms and deal with it the best I could. I watched a lot of television and barely did any drawing, writing or reading. My mind and body went through changes each day. I did manage to check the side effects each day to make sure most of them were normal ones and I didn’t need to go to the hospital or stop taking the new medication. Since I had to stay at my mom’s anyway I stayed “on call” until Thursday when I had a group therapy thing that night with rides set up through medical insurance . .bla blah.. If you’re still with me folks keep reading. I might actually have a point to these 3 pages of 16 point type.

What I thought was going to be a mini-vacation at my mom’s house for 4 days turned into a 5-day rehabilitation and medication adjustment. The seizures and numbness lessened and now I am just numb in the tongue for some reason. The pain lessened the 2^nd day and my dizziness and sleepiness continued but that’s understandable because I take several pills with the same side effect.

This is the first time that I am giving new medications for my Trigeminal Neuralgia and my bipolar a chance for more than a few days in a while. Usually, if I don’t like the side effects I stop. Also, having jobs and many commitments I had to stop taking come meds or I’d lose my job and relationships. Fortunately or unfortunately, I have the freedom and time to give medications the proper time to work through my system and adjust to them and see if they will work. It’s also the first time I feel hope and faith through the temporary side effects to feel better. If it means a few weeks or a few months to find out so be it.

I might end up stop taking some of them and trying it again and that’s ok also because I’ve learned that treating rare neuralgic disorders and mental illness is not an exact science. Sometimes faith and hope is the most important ingredient to the recipe of mental, emotional, physical and spiritual wellness.

Oh yeah -Doctors, lawyers, psychiatrists therapists, group therapy and 12-step meetings are also part of the mix to my personal recovery. If I keep it all balances and don’t let myself get overwhelmed then I might even grow up and out of whatever it is I am now and was before

Hillen Prison Blues – I Feel the Fluids Rushing

I feel the fluids rushing

Up and down

And back

Up and down

My back

Spine

Light headed

Heavy hearted

Ears fuzzy disoriented

Vertigo

Bones crack every time

I move

Elbows

Knees

Hands

Feet

Fingers

Toes

FACE

My facial affliction

Nerves explode

Fireworks of the nerves

Side of my face

I seek relief

Scream in agonizing

Torture and terror

I chose

Sleep to

Escape

Forget

Awake

Remember

Impairment

Then depression

Sleep

Forget

I want to forget

I don’t want to sleep

I want to sleep

I love my sleep

But not much

My dreams are pleasant

And my reality is a

Nightmare

But

I’d rather have the bad dreams and the good life

“Sleep. Those little slices of Death. How I loathe them.” Edgar Allen Poe said.

 

“Sleep. Those little slices of pleasure. How I adore them.” Rich Hillen Jr said

Paralyzed From The Inside Out

Paralyzed from the inside out.

My brain is functioning yet my body can’t move. Glued to the couch unable to even change the channel with the remote. I want a cigarette but can’t lift my arm to light it.

 

I can feel my insides shake nervously. Rapidly. My heart is beating a mile a minute yet I can’t move my body. My head is unfocused. The television is in front of me making blurred sounds and images.

 

I pray. I cry. I take deep breaths.

 

Finally, I can move just enough to get to the pill bottle and swallow anti-anxiety meds, I manage to sit up and wait. I fall back down.

 

It passes. Now I am worn out from the experience. Tired.

 

Whew.

Silence My Lamb

.Butterfly

Today Again

Shit. It’s today again.

Lazy. Not so much. I sit. I lay. I spend the day trying to make my meets end or end meets or meats.

Pay bills. No money. Get money. Owe money. Pressure. Stress.

Mail. Social Security sent me 5 separate 10-page packets to fill out. Explain my disabilities. I tell them that the experience of filling out the forms triggers all of my disabilities. It’s true. I get almost halfway done and have already medicated myself with over the counter and prescriptions.

A night of watching Kevin Smith movies and eating the sheet of dried seaweed my roommate gave me. Wash it down with any liquid I can find to dehydrate and rehydrate me.

I create imaginary masterpieces to get the toxins out of me and into you.

Piss more toxins and negative energy away in the toilet every hour from drinking too much water all day. It’s good.

More pain. More anxiety. More pills. More time.

I sleep peacefully.

Dreams are so much better than my life sometimes. I wake up disappointed and sweating. My bladder is full. I spend 5 minutes straight unloading.

Stumble in the hot house turning on every fan and I play with the thermostat.

Drink water and wait for my coffee. Cigarettes and water.

Shit. Today again.

Existing in Pain – Daily Rant 2 Days Late

Note: I wrote this on Friday but haven’t had the chance to post it. I’ll give you an update at the end.

Woke up way too early. Trouble breathing. Asthma? Then the stomach turned and I had to go. To the bathroom. Funny. I have no bath but I call it the bathroom. I went. Felt a little better.

Face hurt. A little at first. It always starts with a little. It got worse.

Trouble breathing. I was smoking. Maybe I smoke too much. Then the racing thoughts and the heart followed. I made coffee. Good for asthma. I heard. I heard a lot of things so I drank coffee and a lot of water with my 4 morning meds. The stomach and heart beating anxiety kicked in as I tried to watch Buffy the Vampire Slayer.

I had to be somewhere to help a friend with a ride this morning. The meds were kicking in. I started to feel a little better as I got dressed and mapped the address of my friend. The breathing was like hyper ventilating. It came and went. It went when the pills kicked in. Pills. Have to take ‘em if I don’t want pain or anxiety. I did.

I got a text just as I was psyching myself up for a long ride. It was my friend’s boyfriend canceling the ride I was to give. The long trip. Over. Now I can stay home and try and relax. Or feel pain and anxiety.

It goes away eventually. Drugs kick in. Feel better. Wear off. Feel worse.

Need a nap. No nap. I guess the stress is up there. Anxiety.

Watched a couple of movies. Did a few tings on the internet. Hurt. Can’t breathe.

All over the place. God. Bad. Breathe freely. Breathe naturally. Breathe short and slow. Loss of breath. Chest pain. Face pain. It’s all running together.

I look up the symptoms and talk to friends that have similar conditions. They confirm that it’s just a panic attack. Combined with my face pain. It hurts.

Don’t want to complain. Complain. Complaints. Revealing my pain to you and everyone else is  . . .  like getting a mew therapist.

Just repeating my day out loud. No answers. Just venting.

Conclusions come after solutions after diagnosis. Am I sure it’s not just  another panic attack in a way I haven’t experienced.

Experienced. Weird pain. Something different.

Do I need a hospital or not?  Go to bed and sleep. Get up early tomorrow to do some work for my uncle.

Good. I’m falling asleep as I write this.

Note: Aftermath- I was hoping that a good night sleep would be the cure. It wasn’t. I woke up at 6:30 am with the deep breaths and panic for no reason. I was tired but that was normal. I drank less coffee and took my morning meds, More face pain. I took pain pills. Everything kicked in by the time I got to help my Uncle at cleaning offices. I was just tired from all of the pain and anxiety the day before. I made it through the work hours. Then I had to go home shower etc and pick up a model for a photography project. It was an all day event but now and then I felt the anxiety and shortness of breath but had to keep going and took anxiety meds. I got through the day and went to sleep early. Woke up today feeling a little bit of the breath thing and anxiety and it slowly went away and I helped my Uncle again and now I just feel emotionally hungover. Tired blah. I made it.

A POEM: Solutions & Survival

Back to the up all night and no sleep routine. It’s an old act I developed in high school or was it college? Not a stand-up comedy routine. Could be at this point because if I don’t laugh I’ll cry.

 

Cry. Soft whimpering cries. Loud screaming cries.

 

No dies. Not yet.

 

Tired wired eyes. I doze off then wake up. I wake up I doze off.

 

I tried to eat my worries last night and I couldn’t keep them down.

 

I’m hungry then I can’t eat. Can’t sleep. What can I do?

 

My body rejects my denial and forces me to think. Think. Think

 

I slept earlier yesterday after a panic attack. Anxiety attack. Anxiety went into cruise control and got into an accident with my insides and outsides. I was inside. Inside.

 

I slept yesterday. It was a dream. Not the sleep. It was dream to sleep. The day before I slept. Slept early. Awoke early.

 

Productive. Creative. Happy. Happy.

 

Today and last night and some other nights the pains in my face drove me to a painkiller. Kill the pain. Kill pain.

 

Kills pain. I can’t sleep. Can’t sleep. I dream of sleep. Dream sleep.

 

Remember the night owl I once was? I wanted to be? Proud to be?

No worries.

 

Worries. Problems. Dilemmas. Solutions.

Solutions.  Think. Think man, think. A Solution. Solutions.

 

Solution? Not there yet. Not sure I’m anywhere yet. Had one or two or three or more. Solutions. Each solution is kicked out of the way by a bigger worry. Bigger problem. Bigger dilemma.

 

I cry. I laugh. I get outraged. I am sensitive. Sensitive artist. Bah.. Starving artist. Bah..

 

I go away for a minute. Two maybe three. Minutes. I am surrounded by love and sex and fantasies I make up as they float through my dreams.

 

I get home to an empty fridge and a coffee table cluttered with reminders of my worries. I scramble for solutions. I do what I can to solve the worries, problems and dilemmas.

 

Productive. Creative. Happy?

 

Not sure. Doubt. Hope. In between.

 

Go forward. Move ahead. Back to the taxi. Whip it.

 

Maybe I will. Whip it. Whip it good.

 

I win even If I lose.

I survive. Survive.

 

Epiphany Shmiphany

 

I’ve been waiting to sit down and write about an “epiphany” I had a little over a week ago. Epiphany. For such a soft word that is almost pretty as it rolls through my mouth it is a powerful word. I’ve had these changes in attitude and  realizations ( a harsher sounding word that’s way less powerful). I was basically going to tell you about the “epiphany” that I have told you about and have experiences over and over. I guess I should mention it briefly then move on, huh?

 

I was watching a documentary about Hubert Selby Jr, author of classic novels like Last Exit to Brooklyn and Requiem for a Dream that were made into fantastic movies, about a week and a half ago. Learning about the struggles of the life of an artist is just rehashing what I already knew. An artist is born that way. Born to struggle through life so he can create art. That is his purpose and contribution to life. In a world of money oriented and materialistic people, we the artists, are giving instead of taking. As soon as we share our creations with at least one other person our art is art.

 

Ok, I’m not going to go on on and on about my purpose in life and your role in it. Basically I was just reminded of what I need to remember and keep forgetting. The struggle is the burden and consistency and I have to comment, react and create from it then give t away.

 

“I am an American artist I have no shame.” Patti Smith

 

The past few weeks have been terrifying, incredible, amusing, and on and off weird.

 

I’ll start with right now. At this moment I am sitting inside a coffee shop in Collingswood, NJ. I just finished talking to a friend I’ve hung out with only a few times but when we see each other there is this bond we have and we end up in deep conversations about art, music, addiction and sometimes the meaning of life itself. Ha. He’s in a similar situation as me and we always get along.

 

I went to the welfare office at 7 am this morning and spent over 2 hours trying to get some kind of assistance. I followed it up with a visit to unemployment to waste another hour or 2. It wasn’t a complete waste. My unemployment is back on. I just had to fight for the weeks they held back. This is fantastic news after waiting almost a month without the money and bills are adding up.

 

When you’re broke. Really broke. You start thinking about every coffee, donut, dinner out, pizza delivered, soda, etc and you over analyze what you wasted money in the past while still spending the same money on the same things. Oh yeah, the air conditioning is killing my roommate and me. Both he and my landlord suggested I turn it off and leave the house each day and hang at a coffee shop or somewhere with internet connections. These days that’s pretty much every coffee shop and eve restaurants and bars.

 

I went home after the unemployment office. It was about noon. 5 hours spent on trying to get help and it was semi successful. I still had the entire day ahead of me. I still do. I rubbed one off watching Judge Pierno or whatever her name is to relax. Not long after I got a phone call from the lady I spoke with at the unemployment office to tell me that all of the past money owed to me will come through. I was more floored by the fact that the woman called me back as soon as she found out than I was about the money. That was just really nice. I was ready to get out again and head to the pharmacy and then relax at the coffee shop. I am relaxed despite the caffeine.

 

I just ran into a girl I knew from a group I used to attend. Young, beautiful and great body and she is a fellow writer. A talented writer. I had such a crush on her a while back. I had so many fantasies about her in the past few years. I haven’t seen her since this past winter when I fist grew my beard and hair long and she called me a Wooly Mammoth and I was embarrassed and I was already anxious borderline agoraphobic. Weird. It was just a cute little name-calling and borderline flirtation that helped speed up my already progressing reclusiveness.

 

Irony. Now that I am leaving the house I run into the girl that I not only had a crush on but made me not want to go out anymore. I have to admit when I first laid eyes on her I got a little anxious and I pretended not to see her. I wanted to hide and jump up and call her name. I didn’t. I went back to writing what you just read. What I just wrote. I felt comfortable when she approached me on her way out. She was actually working, looking for a story to cover for one of the publications she writes for.

 

We talked a little bit about writing and how good it was to see each other then she left and here I am. This is the message of my writing today. Random events that mean nothing and mean everything to me.

 

When I got here I randomly started talking to a guy I never met before about misery versus happiness. I happen to be learning and relearning that life is a struggle and it’s what you put into it. This is before I met the others here today.

 

Last week I went to Philly to sell my cds to a shop where I’ve known the owner for a while. We had a great talk and he gave me a great price and I left a happy man. I wandered to a coffee shop I’d never been to greeted by 3  barista angels that worked the registers and coffee machines. People talked to me and greeted me like I was someone. I grabbed my drink and tipped then sat right outside so I could smoke. Huh… I haven’t had a cigarette yet since I entered the coffee shop. Usually I jump right out side and smoke. If I did that I wouldn’t have run into my friends. Shit. Now I want a cigarette. . .  .

 

*Dramatic pause for Rich Hillen Jr’s cigarette break*

 

Great smoke break. I’m texting my friend maybe girlfriend that lives in New Orleans all about my day. She’s another story. We’ve been talking about moving in for a while but we can’t afford it yet. A long drive and she has a pooch.

 

Just 3 weeks ago (maybe 2 and a half weeks) I was so desperate and stressed about my financial condition and it’s slowly pulling itself together.

 

Once I had my “epiphany”, I felt better over all and knew things will work out if I make the effort and try not to feel or come off desperate. I was ready.

 

My roommate told me about a music shop in Collingswood that would probably give me a good deal on my amp I’ve wanted to sell. I headed out one night to sell the amp and I ran out of gas within 4 blocks from the store. I laughed. My gas gage isn’t always working right and it says that there is less gas than is in there. I was on empty and was planning to get gas after I sold the amp.

 

This teenager appeared out of nowhere and started pushing my car. We couldn’t budge it for some reason. I was a foot from the corner street wedged on the curb. I called my close friend that lived in Collingswood and he was on the road going to a show and couldn’t help. I was pretty far from a gas station. I racked my brain finding someone in the area that could and would help me out.

 

I called my filmmaker friend who I’ve worked with on a few projects and he came through for me. I was still in a decent mood. I was also lucky enough to have had a gas container. So my friend picked me up, took me to the gas station and back to my car. It worked out because he wanted to talk to me about his upcoming projects. Just as we pulled up near my abandoned giant red beat-up 1994 Lincoln Towncar there was a Mini-Cooper in front of it and my cell phone rang with an unrecognized number. I just said to my friend that it looks like my mom’s friend’s car and it was my mom on his cell phone. I laughed again. My mom and her friend were parked there checking to see if I was ok. I was. They left. It was starting to get windy and a storm was on the way. I gassed the car up, thanked my friend and drove off to get gas.

 

I debated going to the music shop because of the gas problem and the storm brewing. I went anyway. It was a great decision. There were 2 women sitting in there with a guy that worked there. I jumped right to business and didn’t even check out the ladies. I wanted money. I knew exactly how much I wanted for it and the guy looked at and tested it. He left to get the owner to look at it and appraise it. While he was gone I looked at one of the now noticeably pretty women and she said “Hi Rich.” I knew those eyes of hers. It’s been over 20 years but you don’t forget her eyes. I said hi and I was a little uncomfortable yet happy. Memories rushed through my head of all of the nights I hung out with her, her friend and my weirdo friend. Many drinks and many other things. I tripped on acid with this girl at the Philadelphia Museum of Art. She was at my college graduation party. One night we got really stoned and went back to her place to look at her art (she was an incredible artist). We had a most memorable passionate night that we agreed not to tell anyone about. I wonder if it made it special because it was a one-time deal. It doesn’t matter. Here she was face to face 20 years later and looked the same.

 

I knew she lived in the area for years and heard about her musician boyfriend/fiancé through a friend of mine. I did run into her once 10-12 years ago and it was a brief conversation because we both had somewhere to go. So you can probably guess who owned the music shop I was standing in hoping to make a buck from. It was the infamous boyfriend/fiancé or whatever. Then I talked to him about the people we had in common. We talked after he paid me righteously for the amp of course. I left feeling good.

 

Then came the storm as I was leaving. A physical storm followed that Sunday afternoon after “helping” out my uncle who is really my great aunt’s live in boyfriend clean offices. I pulled muscles in my arms and shoulders. This triggered my infamous Trigeminal Disorder. The pain was at its’ worst since I was first diagnosed with it in 2005. I was running out of pain meds and I couldn’t refill them for a week. I took migraine aspirin and sleep aids. I spent most of the next 3 days away to escape the explosions in my face. I was in extreme pain for 3 days then the recovery took a day or 2. I was finally back in the world and that’s when I sold my cds and hung out in Philly.

 

This past Saturday I did my usual “helping” out my uncle whose not my uncle. Afterward, I met up with my adopted mother, the one that raised me, to have lunch in honor of my adopted father whose 2^nd year death anniversary that also fell on Father’s Day. We were supposed to meet up the next day but she changed her mind and we had a great dinner and conversation.

 

On my way out I ran into another friend I’ve known for years sitting on a bench and I voluntarily joined him. This is a big step for me to be social and I hung out with him for an hour in the hot sun drinking an iced coffee from Starbucks. I was in a good mood. I headed home and watched some movies and did a little writing.

 

Sunday was Father’s day and my adopted father’s death anniversary. It was an awkward day. Having 2 dads can be difficult. My focus was on the dead one who raised me and not my biological father who came back in my life as an adult and has been there for my for over 20 years now. I called him and text him. We decided we will celebrate when I can afford it. It ended nicely.

 

Shit. This was a random bit of writing that went on forever. If you’re still reading, God bless you and thank you for sharing my life as it’s still spinning in and out of Epiphanies, pain, poverty, good memories and hopes of tomorrow, meanwhile, living in the moment no mater how good or bad it gets.

 

Ride on.

 

Right on.

 

Write on.

 

 

Echoes of Pain: A Poem

Echoes of pain.

 

The sweet sensation.

 

Ohh . . .

 

The comforting echoes of pain.

 

The aftermath of a storm in my face.

 

A tornado disconnecting the wiring in my face.

 

Waves of electricity stabbing me.

 

Agony. Welcome home extreme agony.

 

Just before it goes away.

 

Just before the pain goes away there’s a feeling.

 

A feeling that echoes through my face.

 

Telling me it’s going to pass.

 

The sweet sensation.

 

Ohhh.

 

Echoes of pain.

Broken

Never say, “it can’t get any worse than this.” It always does. Maybe it’s a self-fulfilling prophecy. Maybe it’s self-sabotage. Maybe it’s fate. Maybe it’s a “jinx”. Whatever it is, it can and most of the time gets worse.

I’ve been writing through it. I can’t seem to finish anything to post. I’m afraid to post certain things about my life. I am breaking my entire life’s goal to hold nothing back in my writing. I find myself holding many things back for various reasons. I don’t want certain people to know certain things about me. I am embarrassed and ashamed of my life conditions at times. I am afraid of letting you in.

The more down hill my life seems to go I am les inclined to write and post about it anywhere. Fuck it. I’m going to start letting things out. I am helpless and feel hopeless on and off through this past year. It’s mostly due to my Trigeminal Neuralgia (TN) and Bipolar Disorder and related depressions and anxiety. These conditions led me to my financial condition and create more stress, which is the key activator of my conditions.

At first when I was fired last year I was devastated but I had things under control financially because I was living with my mother and had a lot of money in the bank. I didn’t want to work right away. I wanted the summer off to publish my novel and promote it to minimum prevail and create videos and more books to sell. It was the ideal life of a single artist from my viewpoint. By August and September 2010 I noticed that my mother was increasingly unhappy with me around the house all day with the exception of my AA meeting attendance. I was less and less interested in socializing and I even started getting anxiety when I did socialize followed by depression when it was over. Since I was fired I lost my health insurance and stopped seeing a psychiatrist and therapist. My family doctor kept up my prescriptions.

I started looking for ways to make money and jobs and made a little bit here and there. My savings started dwindling by September 2010. I knew my mom and I wouldn’t get along without my getting a job. At the same time I was talking to my friend from meetings and he mentioned in passing that he was getting a house he owned ready to be rented out. I asked how much and how many bedrooms. The price was cheap and it had 2 bedrooms so I immediately jumped on it mostly to save my relationship with my mother. I didn’t want to move. I had no ego about living with my mother at my age like I would have at one time due to the circumstances. I had a friend in mind to move in with me that I’ve known for years and we’ve talked about living together despite our similarities and differences.

I admit I was excited about the house when my friend told me about it and the first time I took the tour. The day I drove to the house to sign the lease and pay our deposit and rent I got a really bad feeling that it was a bad idea. My blinders were down and I looked around the bad neighborhood I was about to move into. Camden. Camden, NJ has the highest crime rate in the country. My new neighborhood id the nicer part of Camden. I grew up here years ago before it got so bad. My friend now landlord assured me that he has had no problems in the 30 years he lived here. My roommate and I went out to celebrate the house at a big steak house and chowed down and I repressed my feelings pretending to be happy.

I moved in reluctantly October 1^st 2010 and I have yet to be entirely comfortable in the house, the neighborhood or with my roommate since. Once in a while I would be ok. At first I couldn’t find my creative inspiration. After living in the house I grew up in with parents that were successful artists supplying me with inspiration on a daily basis it was a huge adjustment.

I was set financially to cover the first couple of months or so. I was collecting little unemployment. My great aunt’s boyfriend who I consider an uncle threw me a little work here and there with his business but not enough. My bills were barely getting paid but there were getting paid. I cashed out my 3 401ks to help pay bills. Each month something would come up to cover my bills. From little jobs here and there to selling my serial killer collectables and my personal artwork online.

In November 2010 another friend said he could get me a job doing phone collections. At first I was hesitant but I eventually got excited. He set me up with an interview in November 2010. I fell in love with the job and I was hired on the spot due to my experience in phone sales. I was given the runaround with a start date. I was told I’d start the middle of December 2010 and didn’t get my start date until the middle of January 2011.

After a 2 year remission my TN came back a week before my training date. I went back on painkillers and increased my anti-seizure meds. I made it to my first day of training and it went well. That night I had a major TN attack and had to take pain meds and was up all night. I woke up at 12 pm and I was supposed to be there at 10am. I blew it. I tried calling. I thought about going in anyway but didn’t want to waste the long drive. I eventually talked to the boss and he fired me. I was devastated. My pain got worse and my depression kicked in. I was in shell shock. This hasn’t happened since I was an active drug user and alcoholic 20 years ago but I was sober.

I was a wreck. I had such high hopes for the job and the money. I had started a social network called Novaboon with my roommate and I was going to out money into that and many other internet projects. I had goals and reams again before I started the job. It all came crashing down in one event as a result of my TN and Bipolar.

I got through the following months selling things and spending less. It was barely enough. I was coming to the conclusion that perhaps I am one of those people that needs to be on Disability. I’ve always viewed people on disability as copping out unless they were seriously and visibly disabled. I was also worried about my mom’s opinion. She always said she would disown me if I were on disability. Maybe not that extreme but she would be unhappy. The day came months ago that even my mom suggested I apply for disability. I did. I am. I used a service that a friend recommended to do the work for me.

I have a friend that has been on SSD for the past 15 years or so and I used to watch him having to jump through hoops and go crazy to meet the requirements to stay on it. I remember thinking that it’s easier just to get a job because it’s less work and aggravation than trying to get SSD. It’s a catch 22. Most people that are disabled whether it be mental or physical have trouble making appointments, filing paperwork, meeting deadlines, following through with things and functioning on any “normal level” therefore it’s a fight for us to get the disability. That’s why I used a service. I still had to follow through with paper work and phone calls. When I get depressed I can become immobilized. I am literally unable to move or do anything. I used to think that I was a lazy person. I’ve come to realize that it’s depression that keeps me from doing things. Most people don’t see the difference.

The last week of May I was committed to traveling to Indianapolis, IN for a true crime convention called The Crime Scene to sell my art, my books and perform my songs about serial killers. One of the guys in charge who I call friend now, took care of my flight and a place to stay. I was taking a big chance buying a bunch of my books to sell there when I barely had enough to pay my rent. My car broke down the week before. I had major bills due as well. The travel was a pain but the event was a nice escape and I sold out of my books and sold some art. My agoraphobia disappeared for the weekend. It was like a fantasy escape. No thoughts of my problems for a few days. I came home and I was worse. More pain. More anxiety. I was short paying the rent.  Owe my cousin money for helping me with the rent. I owe my roommate money for my car because he got it fixed since he was driving it at the time. My registration expired and my insurance payment is over due. I have barely enough money in my pocket to buy food and smokes for the next couple of days.

To top the problems of the month off, my unemployment is being held and reviewed and will not be settled until June 15^th 2011 on a phone interview. I was informed it’s because I was fired. I might lose the little unemployment payments I was getting.

I am planning on going to Welfare and apply for food stamps and see about rental assistance. My depression is getting so bad combined with my fear and agoraphobia I am having trouble getting out to the office. I ried calling and the phone system hung up on me several times after 20-30 minutes of waiting.

My roommate suggested I try and get a job yesterday and work the minimum hours allowed when on disability. He went on line to find out the minimum etc. I’m afraid if I get a job I will be rejected on the disability. Not to mention that I might not be able to handle working which is why I applied for disability in the first place. I called the company handling my case and asked them about working. I can work 10-15 hours a week and I can’t make more than $800 a month. I have to call them if I get a job and fill out more paper work. I asked the representative to be honest with me off the record. I asked if I worked on record would it affect my case and are the chances good that I will be turned down if I am working. She said yes it would look bad if I worked.

So here I am. Depressed. Afraid. In pain. No income. I am selling nothing and falling into more debt. I have projects in the works but no motivation to get them going. I’m living in a house and neighborhood I hate with an unpredictable roommate that I like but I am uncomfortable living with him.

Through my life I have always survived. I know I will survive again. I am an artist, writer and a creative mad man. I am a Bipolar, agoraphobic, anxious artist with the worst pain known to man and as hopeless as I feel I know this will pass and I will come out alive.